Things like...
*Get a lab report showing Zoe's absolute neutrophil count.
*Find out what the Lovenox dose is changing to.
*Talk with Evelyn, the nurse educator, and get trained on giving shots.
Just over two months ago, these "things" would never have crossed our minds... but now this is our reality and these are things that have made us more loving and grateful as parents... things that have brought our family relationship even closer... but also things that have caused our little girl pain and discomfort and made her grow up faster than we would like.
Zoe is still neutropenic (really low levels of white blood cells), which means she still has to be isolated... It's been tough because we feel like we can't allow her to be a kid, but actually she doesn't have the energy to do things she'd like to do anyway. We went on a walk this weekend and normally Zoe would RUN the entire trail, but she didn't even want to get out of the stroller. It's been difficult for Sean and I to see this change...
You three are in my family’s thoughts and prayers continually. I just keep thinking that this difficult time is only preparing you two and Zoe for a bright future. I have a friend and distant relative who survived cancer as a teen and now help thousands of people from around the world. I know his family never thought he would be able to do what he does. Art Berg another friend of mine became a quadriplegic at 22 years old and a millionaire by 40. He owed it all to the difficulties that happened because of the accident. I pray that this burden may be light.
ReplyDeleteCory J