Monday, February 28, 2011

Our week...

It's a darn good thing we have insurance... because we'd be in serious trouble if we didn't.  I'm incredibly thankful every day for insurance and I worry about people who aren't in the same boat.  I can't imagaine the stress that would add to already stressful situations... 

This was our week.  MONDAY = port study at the hospital.  TUESDAY = a day off, but not much to do because it was snowy.  WEDNESDAY = an appointment for me and a vascular study for Zoe at the hospital.  THURSDAY = second port surgery.  FRIDAY = the never-ending oncology appointment.  It was a lovely week :)

                        Waiting for the port study to begin.  Thank heaven for Littlest Pet shops!

 Z fell asleep on the table after the vascular study.  She NEVER falls asleep in places other than her bed (sometimes in the car, but never in a random place.)  She has been completely exhausted...  This picture doesn't capture what happened, but it was actually really eery...  The lights in the room were dimmed, but there was a light shining right on Zoe... as she started falling asleep, she smiled and I caught a glimpse of her laying on the white sheets, with her hair swept off her face.  It was beautiful and horrifying all at the same time. 

Katie, one of the amazing Child Life educators, was showing Zoe for the second time what was going to happen when she went back for surgery.  In this picture, Zoe is helping give a "shot" to her little doll - the doll wearing the mask to get knocked out with anesthesia. 

Ready to roll for surgery...

If you've had a child get anesthesia before, you know that they "wake up" super confused and really angry.  I began singing to Zoe and she immediately calmed down... It was one of those mothering moments when you know that you make a difference.  We fell asleep holding each other.

Nothing a popsicle can't cure :)

My two favorites...

My beautiful girl is starting to look sick - having poison pumped into your body will do that...  She is incredibly pale and has a lot of little bruises all over her body.  Her hair may be on the way out.  Last night, I was trying to comb out a massive rat's nest she created during her nap and I ended up with two large handfuls of hair... 

6 comments:

  1. April & Sean,
    Zoe is more beautiful than ever! Such a little body going through so much is amazing. I can't thank you enough for sharing this journey with us so we feel we can be a part of the hope this pain will pass quickly. We love Zoe and pray for her all the time - there is the photo of her holding the blue flowers in my office so even at the busiest of times I can remember Zoe in my thoughts. Lots of hugs and love from Charleston, SC!

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  2. I'm literally crying. Zoe amazes me and that pic of you and her asleep in the bed is priceless...i can't even find vocabulary to describe it. You really are an amazing mom. I remember taking care of kids with ports and what not for home health but it really hits home when its happening to someone you know and care about. And as for feeling overwhelmed with asthma with my boys right now....i am completely humbled seeing what you're going thru. We'll keep you in our prayers.

    P.S. I love all your commentary...keepin it real by the sweet pea #4.

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  3. April this post makes me cry...seriously I have tears running down my face...I am soooo sorry you guys are going through this! You are amazingly strong and so is Zoe!

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  4. This is just so hard. Her innocence and sweetness through everything she's experiencing is enough to make us all cry. We continue to pray that the "poison" will be helpful for Zoe. I'm so glad that she has you to cuddle with and to comfort her through the difficult moments. You're both more amazing than you realize.

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  5. You know a friend's "reality" is kind of a nightmare when it brings you to your knees just reading about it. I am glad you guys are able to be there for her and with her- even if it is holding her down to give her a shot- or to snuggle her up when she wakes up from a surgery. I am grateful you have the strength to be there for her because it sounds unbelievably hard.
    I don't know if it's therapeutic or not to blog about this but thank you for keeping us up on the progress, good and bad.

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  6. We love you and miss you guys so much ! God Bless

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